Weston was born on April 27, 2026, and what should have been the beginning of a typical newborn journey quickly became much more complicated.

We spent his first month navigating hospital stays, specialized care, testing, procedures, and constant monitoring as doctors worked to understand and manage his medical needs. Weston has been diagnosed with Stickler syndrome and Pierre Robin sequence, which have caused significant airway and feeding difficulties. He has a complex airway and sleep apnea and is followed closely by multiple specialists.

Weston was born via C-section and initially went to the NICU for respiratory support. Thankfully, he stabilized and was able to come back to our room, and eventually we were able to go home. But just one day later, Weston had to return to the NICU for phototherapy.

Once we were finally home and settling in, we began noticing episodes where Weston would choke and have trouble breathing. As a nurse, I recognized signs that he was struggling to breathe, and we knew something wasn’t right. Weston was ultimately transferred to Children’s Hospital in Omaha, where we spent the next month in the NICU.

During that hospitalization, we learned that Weston was silently aspirating. Because he could not safely take all of his nutrition by mouth, he needed a feeding tube. He eventually underwent surgery to have a G-tube placed.

During that surgery, doctors discovered that Weston has a critical airway. Because of the difficulty they encountered with his airway, he came back from surgery intubated. There was concern that if he needed to be intubated again, they might not be able to safely get the breathing tube back in. Thankfully, he was able to have the breathing tube removed the following day.

After his G-tube was placed and his medical team adjusted his feeds, Weston began gaining weight and we were finally able to bring him home.

Today, Weston still has a long road ahead. He has numerous appointments and continues to be followed by multiple specialists. There is also still a possibility that he may need surgery for jaw distraction because of his Pierre Robin sequence.

Through all of this, Weston has been incredibly strong and resilient. He has already been through more in his first few months of life than most people could ever imagine, and he continues to amaze us every single day. He is so deeply loved by his family. ❤️

Our family has spent countless hours traveling to appointments, attending specialist visits, navigating hospital care, and caring for Weston around the clock. We are doing everything we can to keep him safe and make sure he receives the care he needs.

Why We Are Asking for Help

Because of Weston’s medical needs, I currently cannot return to work.

This isn’t because I don’t want to work. I desperately want to return to work and help support our family. Right now, however, I cannot safely leave Weston without the level of care and supervision he requires.

We are currently working to get private-duty nursing hours approved for Weston, but we are at the mercy of the insurance process. Once those nursing hours are approved and in place, I will be able to return to work while knowing that Weston is receiving the specialized care he needs.

Right now, we are stuck in a difficult gap: I need to stay home with our medically complex baby, while we wait for the nursing support that will allow me to return to work.

Meanwhile, our household expenses continue, along with the additional costs that come with caring for Weston. We have frequent medical appointments, many of which require traveling out of town, along with the everyday expenses of caring for our family.

We are asking for help just to get our family through this period until Weston’s nursing hours are approved and I can return to work.

Donations will help us cover essential household expenses and medical-related costs, including transportation to appointments, while I am unable to work.

Our goal is not to rely on fundraising indefinitely. We simply need help getting through this temporary but incredibly difficult period. Once Weston has the nursing support he needs, my goal is to return to work and help provide for our family again.

Asking for help is incredibly difficult for me. I am used to working, providing for my family, and doing everything I can on my own. Swallowing my pride and asking for help has not been easy, but right now, Weston has to come first.

As his mom, my priority is making sure he is safe, comfortable, and receiving the care he needs. At the same time, I am doing everything I can to navigate this situation and get our family back to a place where I can return to work.

If you are able to donate, no matter the amount, it will make a meaningful difference for our family. If you aren’t able to donate, sharing Weston’s fundraiser is just as valuable and can help us reach people who may be able to help.

Thank you for taking the time to read Weston’s story and learn about our little boy. Thank you for every donation, every share, every prayer, and every kind message. We are incredibly grateful for everyone who helps us through this chapter of Weston’s journey.

❤️ Thank you for helping us care for Weston while we wait for the nursing support that will allow me to return to work.