Hello this is Brett Whitaker and I am starting a fundraiser page for my husband my family and self for after care expenses and bills to help support my family I have a genetic lung disorder called Alpha-1 antrypsin lung dificiency. I am only 38yrs old and need a double lung transplant. My health has gotten really bad over the last few years. Unfortunately since he doesn't have 10plus conservative years work history that means he doesn't qualify for SSID or Medicare so he only receives SSI and only receives 933.00 a month.We called the lung transplant center at Emory Hospital in Atlanta and recently relocated to Florida two years ago to be closer to a closer hospital at university of Florida shands and they said the only option he has is to pay out of pocket for aftercare which would be bills to live near there and our bills at home too.We have 4 beautiful children and don't have the money to start the process. His last pulmonologist appointment which was less than a month ago the doctor told him he needs a lung transplant and very soon if not he won't make it to see 40 because his hearts over commentating with lack of oxygen The lower sacs of his lungs are collapsed. Alpha-1 antrypsin lung deficiency (AAT) is an inherited condition that raises your risk for lung and liver disease. Alpha-1 antrypsin (AAT) is a protein that protects the lungs. The liver makes it, if the AAT proteins aren't the right shape they get stuck in the liver cells and can't reach the lungs. Symptoms are: shortness of breath, chronic bronchitis ( irritation of your airways that makes you cough a lot and causes breathing problems, excessive cough with phlegm, wheezing, COPD, emphysema, decrease in exercise capacity and a persistent low energy state or tiredness, chest pain that increases when breathing in. There is no cure for AAT deficiency.. they have treatments to slow down the progression which are lifelong. He receives aerolast- which is recycled plasma every week. Alpha-1 also affects the heart..this is a disorder of large and small blood vessels in the lung that leads to increased pressure or hypertension in the large vessels leading to the lungs from the right side of the heart. In severe cases, the increasing pressure inside the right side of the heart can lead to right heart failure.. the signs for that are tiredness, heart beating faster when you stand up And weight loss. I am a zz type and that's the worst kind there is. I am on oxygen 24/7 and has only roughly 17 percent lung function. In the last recent months Brett cant even take a shower or walk to the bathroom with his oxygen on without gasping for air. His heart is beating twice as fast as mine to try and keep up. He has all of the symptoms above that I mentioned. It is a struggle to get out of bed most days. Once we hit our mark they can start his process on getting him started with the transplant process. Our two year old daughter also has this genetic lung disease. We would greatly appreciate any and all help and if you would like to see his medical history I can provide that also. I am not trying to ask for a handout I'm trying to ask for help. I am also going to be doing fundraisers to try and raise money as well. We had donations over years but had to use most of it just to survive since my wife is the only one working as a waitress with four kids and life problems along the way. We are in desperate need of any help possible. Thank you and God bless
About this fundraiser
Organized by
Brett Whitaker
Lakeland, FL, USA
OrganizerSimilar fundraisers
Make a difference by donating to similar fundraisers.
Please donate to comment.
{{dame(anonymous, user, donor_name)}} | {{curr(amount,'USD')}}
{{created_at_rel}}{{note}}