My Sister is in the last stages of dementia. With Downs, they age from 10 to 15 years faster than we do.
I bought the plot, but the rest isn't covered.
I've been her sole caregiver, my family is all on a fixed income. I've been her world. She can pass at any time. Currently, I don't have this amount of money available.
Last year, she forgot how to walk. I bought a hospital bed; it took me 3 months just to save up for that. I try to be positive, and I pray for God to help me. But I see her dealing fast. She won't feed herself anymore, most of the time now. She is in content, I pay out of pocket for those supplies. I tried to change the order, the supplies she gets are for ambulatory. Not bedridden.
In 2003, she and my mom moved in with me. 3 months later my mom had a stroke and became bedridden. The day before she moved in, my husband had an industrial accident at work. His back was injured he was unable to walk. I had two hospital beds in my house, me the only caregiver, until one day I walked into my mother's room, getting ready to freshen her bed. This Downs Woman said in a proud voice, I did it, sister, I did it, I took care of her bed. She's OK.
It took her 2 years of watching me care for mom before she attempted her first try of getting into the room and caring for her. I looked at my mom, hair brushed. Bed bath given, meds given, mom only had 1 pill. Mom had a stomach tube, so we crushed her pill, mixed it with water, and of course, I panicked. So the next morning I let sis freshen mom. She was more than accurate down to water once. Ensures pill, she handles our mom with love as she sang to her, I'll fly away, oh Glory and amazing grace." Our mom was surprised at her care.
She has the biggest heart.
I took care of mom's funeral expenses; she passed in 2010, my husband's in 2019. I feel I missed the most important; she's my world, all I have left. I'm strapped. Can't get a loan. No one I can get funds from.
She's not going to last much longer, but with good people, we might get in front of this tragedy.
Her favorite color is pink, so the casket she picked out when we got mom's funeral planned was pink, so we will go with that. I'm going to be heartbroken.
I don't like asking for anything. I've dedicated my whole life to caring for my family. I quit my job and worked from home as their caregiver. My house was a private nursing home. Still is.
I am located in California. Things are pricey. I'm asking for financial help to financea funeral, so when the time comes, I can put an angel to rest.
Thank you for your time. And generosity ahead of time.
With a heavy heart
Audrey
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