About this fundraiser

I am setting up a fundraiser for my niece Eva Grace. She was born with Pfeiffer syndrome, which is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face. Pfeiffer syndrome also affects bones in the hands and feet. She has already undergone one surgery to help correct the cranial fusion and most recently acquired a post op infection with air ambulance transport from Greenville to CHOP in Philadelphia. The funds raised would help with this transport and medical bills that are sure to follow. If you are able and willing to give please do so. This would be greatly appreciated as out of state medical care has many added expenses.

Organized by

Jarrod Nelson

Fountain Inn, SC, USA

Organizer