My name is Willow. I am 23 and I am from Vermont, USA. I suffer from many conditions, Ankylosing Spondilitis, Ehlers Danlos Syndrome, Hydragenitis Superativa, ADHD and Autism. But in 2021 I developed Long Covid and it has completely ruined my life. I have Dysautonomia and Postural Orthostatic Tachycardia Syndrome now. I have not been able to work for three years due to these condtions. It affects my ability to stand, walk, communicate and move things. I spent the 5 years prior to developing Long-Covid, working in Early Childhood Education. I loved that career path and I truly want to work for kids. I am not physically able to do that anymore.
Currently, I have a supportive Fiancé who helps me with my everyday needs and who deeply cares for me. Although I have that, I need to be able to do things for myself. I need transportation. If I have transportation, I could work a desk job that doesn’t require me to stand, walk or move things. If I have a job, I can afford health care for my needs. If I can afford health care maybe one day I won’t need all the supports that I currently need. I want to be able to love living again. I need help.
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