Latest update as of Jun 10, 2025

  • Fighting To Win!

    Thank you all for your continued support - This update will cover the post CAR T treatment that we had such high expectations for - I finally got back to being myself in late March early April - my wife planned a surprise for my birthday in mid-April - several friends came and took me on a fishing trip. We had an amazing time and caught a lot of fish - thank you to all that were here for that - it did my heart and soul so much good to just be one of the boys for a while!

    The CAR T treatment that was completed in Jan 2024 stopped working in July of 2024. I started having some issues with my kidneys and pain in my back and stomach - after a CT scan a new tumor was found in my abdomen area and it was putting pressure on my spine and my right kidney - the tumor was approximately 10"x 4" and had to be treated quickly due to how fast it was growing so I went into radiation therapy to try and stop the growth - went through about 10 sessions and also started a therapy using a chemo infusion - the 2 treatments worked well and made the tumor manageable. I was then referred to a new CAR T treatment trial that was supposed to happen in September - in order to be ready for the trial I had to go through a bridging therapy using a pretty aggressive chemo - that therapy worked very well and brought my numbers / cancer markers under control - one of the numbers - something in one of my light chains (not really sure what that is) was dropped significantly - that is a good thing but not for the trial - that number had to be above 1.5 and I was at .9 - my doctors filed for a variation acceptance and we were denied. We decided to wait for 30 to 60 days to see if the numbers would change so that I could stay with the CAR T treatment - during that time new tumors started growing in my abdomen and we found them in late November when my kidneys began to fail again. I was put in the hospital and another chemo treatment was started because I still was not within the number range for the CAR T - Dr's filed another request for variance due to the aggression of the cancer and we were denied again - that was the last option I had at that time... we were devastated. I ended up spending Christmas and new year's in the hospital again - this was the 3rd Christmas I spent in the hospital, away from my family, because of cancer - I've had enough of this disease.

    In February of this year I was put back into radiation treatment along with an infusion of chemo for about 4 weeks - this slowed the growth of the tumors and gave the Dr's some time to find a new treatment for me - In April we got approval to move forward with the new treatment - Teclistimab and iberdomide - this is a weekly injection and a pill of chemo that is supposed to provide me with some control over the aggression of my cancer. I've been through several weeks of tests and trials to get my body ready to accept the teclistimab - I am the 2nd person in the trial of this drug combination for patients with Multiple Myeloma - this has been used to treat other types of cancer with some success but its new to patients like me with multiple myeloma. I have high hopes that this will be successful - I just started the actual treatment last week - hoping this attacks the tumors and destroys them, and that I can have time to be at least a little normal for a while...

    Thank you to all for the continued prayers and support - our family remains confident and strong as we fight this disease and look to win our fight. My girls and my wife amaze me every day with their strength and faith through the last couple of years of supporting my fight...we have had tears, and anger and laughter and comfort - through it all God has remained faithful to his promise to help us during our seasons that are less than perfect - He has been our refuge and we will continue to be grateful for His will... We are thankful for all that we have gone through and for what lies ahead - our rest comes in His arms.... Thank you again and I'll try to post more frequent updates. We love you all and THANK YOU!

    Fighting To Win!

About this fundraiser

My family and I have been battling stage 3 Multiple Myeloma Cancer since July, 2021. God has been very good to us and remained faithful to His word to take our burdens. We feel blessed and are in a place where we need help but are not very good at asking.

Through these last couple years, we have had ups and downs - we have done a stem cell transplant and at least 4 clinical trials along with 2 other studies. This has kept me alive for a little over 2 years - which is 2 years longer than expected. Recently my myeloma returned in a very aggressive way- it has attacked my spine from my skull to my pelvis, my right hip and right femur and I have developed a tumor on my 11th rib on the left side of my back. The tumor will be treated with radiation- the myeloma will be treated with a new program for multiple myeloma patients called CAR T. This is a process that could add years to my life; and if affective, could let me live without additional chemo treatments for a couple of years. By that time there should be new treatments available for us to continue to move forward with. The reason I’m reaching out now is that my doctors are no longer allowing me to work. I am 100% disabled and our current medical insurance has become unaffordable. I will be going on to medicare in December and this only covers about 80% of our expenses. The cost for CAR T is very expensive and has taken all our savings just to be in the program. This will deplete all of our savings for the second time. I have 3 kids - Emma, 18 - getting ready for college, Ella, 16 - a sophomore in high school and Evie, 13 - a seventh grader. I want nothing more than to be able to support them while I’m still with them - I do have life insurance but I want to be able to support them while I’m living and cancer is making that very difficult. I am asking for any help that you feel like you could provide - any amount helps and will go to pay for our medical expense and help with ongoing expenses for future visits and additional medical treatments to help prolong my life. My family and I appreciate your support and welcome your thoughts and prayers as we continue to battle through this disease. Please know tha taking time to think of us and offer a prayer have tremendous impact on our lives. God has guided us every step of the way and we will continue to live on His time and trust the direction the He wants us to go. Our doctors are great, but what they said would happen has been altered by what God has planned - we will strive everyday to find out what His purpose is for our lives and live to promote that purpose. As of 12/4/2023 I have had another relapse of the myeloma lesions and now the onset of some aggressive tumors. The tumors in my spine have doubled or tripled in size and are effecting my ability to walk without assistance. I have a new tumor over my right eye that is causing some bad pain - doctors say as soon as they can get the T Cells reintroduced into my system that we should see some quick relief. 
 

Here are a few pictures detailing my journey through cancer:

 

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Work trip about 3 months prior to first diagnosis - March 2021
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Just after first diagnosis - about Oct 2021
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In hospital waiting on first chemo treatment prior to Stem Cell Transplant 
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In hospital after Stem Cell Transplant- Go Dawgs! Dec 2021
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Start of losing my hair the first time - Jan 2022
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At Moffitt watching the rest of my hair fall out - Feb 2022
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March 2022 - Bald is beautiful… unless you’re me
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 Finally got some strength back - hair starting to grow - took Ella to see Garth Brooks as her first concert!
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June 2022 - hair growing on my face for the first time ever??? 
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August 2022 after another relapse and aggressive chemo treatment - hair loss for second time…. 
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Friends came up and surprised me with a fishing trip - most fun I had in months!
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April 2023 with my family - was feeling stronger and enjoying myself
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Visit from my friend Jason - great surprise in May 2023
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Having imagining completed for radiation treatment after we found out cancer was back again for the third time. Will be using this for Hallowee…
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Jill and I enjoying a beautiful beach sunset in June 2023
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Had lost some strength in my legs and fell - had a beautiful black eye and 7 stitches over left eye…. 

 

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Me, Oct 2023 - still fighting to survive this cancer. 
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Ella’s HOCO 2023 - one of the reasons I need to live… please help me survive for my family!

Organized by

Patrick Durrence

Bradenton, FL, USA

Organizer