About this fundraiser

I have an illness for the last 3 years that is attacking my nervous system leaving me disabled and unable to work. I have been to multiple specialist and they can’t find out what the problem is. I’m trying to get to Johns Hopkins. My brother was helping me until his passing 4 months ago of ALS. I applied to Social Security and still have no answers. Currently I have an eviction pending, can’t get medications and pay utilities. I don’t have a vehicle therefore Ubers are my only way to doctors and I can’t afford them at this point. It’s just me and my service dog. I exhausted any government assistance for utilities and churches for phone bill and rent. I’m very greatful for any assistance. It’s a scary time for me. Thank you kindly in advance.

If you get into a committed relationship with someone that has chronic health issues, please understand
People spouses family don’t want to hear it or help as they don’t know the hell you’re in!

I didnt ask for my body to fail.

My favorite quote from my doctor was, “it can’t really be that bad if you are still doing everything you do. “ I told him I didn’t know I had a choice. 🤷🏻‍♀️
Years in pain, tired and the many changes in me for no reason or apparent reason ... Hiding everything from someone else, pretending to be doing better than you are; until it no longer works. No matter how strong you want to be.

Then the moment comes when they tell you what you have ... You have mixed feelings: you finally know what you have, but how do you deal with it?
Lack of encouragement, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.

Then, the daily responses, "Why did you get so fat?" “I have this great diet, if you just go out and exercised.
That once beautiful hair of yours now awful and it falls out.
What happened to you??....
This is all true and that's why I'm sharing it!

Silent and invisible diseases do exist ...
When you have an invisible disease it is difficult to argue from your perspective with ignorant people.
Life takes a lot of turns !!!

Tired of being told:
* Did you go to the doctor?
* Have you tried this?
* Have you tried that?
* I don’t know what else we can do for you...

Yes! I tried and still try everything !!!
Doctors say this disease is forever. That I will not heal. However, I am not giving up, but I want to make others realize:
* A nap will not cure me but it will help me ...
* I am not lazy, I take medication and it sometimes makes me sleepy.
* I am not angry but sometimes cranky with pain.
* I struggle daily with pain, mobility problems, fatigue, the criticism of my environment.

Most frustratingly, people look at me and say, "It can't be that bad; you look good "
Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good, it is an "invisible" disease.

This disease affects me physically, mentally and emotionally. Because rare autoimmune diseases cannot be seen, but we feel them.

And they are there ... Silent attack but extra painful.

The following I suffer from daily:

-Ankylosing Spondylitis
-Crohn’s Disease
- Ménière’s Disease
-Addisons Disease
-Hashimotos Disease
-Graves Disease
-Autoimmune disease 
-Sjogrens syndrome
-Polycystic ovary syndrome.
-Rheumatoid arthritis.
-Chronic pain
-Multiple sclerosis.
-Myasthenia gravis.
-Pulmonary hypertension.
-Epstein Barr syndrome.
-Chronic fatigue syndrome.
-Raynaud and Scleroderma.
-Neuralgia of the trigeminal

Organized by

Kerry Clogston

Saint Louis, MO, USA