Latest update as of Nov 25, 2024

  • Heartfelt Gratitude from Olivia's Family

    Dear Friends and Family,
    We want to express our heartfelt gratitude and deep appreciation for your generous support of “Keep on SHINING Olivia,” throughout our sweet Olivia's challenging journey with this rare, progressive & debilitating Mitochondrial Disease. Your incredible kindness and compassion have been a beacon, a guiding light, helping to keep her spirits high even during the toughest times, while also uplifting her family more than you know, with your compassion.

    Unwavering Support and Impact:
    Each of you has played an invaluable role in this lengthy journey, and we are profoundly grateful for your unwavering support. Your love, encouragement, and willingness to stand by us have made an immeasurable impact on Olivia's life and our family as a whole. From the smallest gestures to the largest sacrifices, help with rides to doctors’ offices, meals dropped off during times of extreme illness, every act of kindness has been recognized, your prayers have been felt, all continuously contributing to her strength and resilience.

    Looking to the Future:
    As we look to the future, we know the road will be long, filled with fears, uncertainties, continued surgeries, and extensive challenges, however we find immense comfort in knowing we are not alone. You have all become a vital part of Olivia’s story, helping us navigate the ups and downs of daily life with hope, bravery, and courage. Your support has not only lifted Olivia’s spirits but has also strengthened our family’s bond , while deepening our faith in the journey ahead.

    Celebrating Olivia's Joyful Moments:
    We are especially thankful for the moments when Olivia gets to SHINE brightly at school, interacting with her peers and creating cherished memories. Ultimately, her health is her top priority, & she does an incredible job, however sadly this doesn’t permit time or health for sports or much social time outside of school, as she is busy with therapies, endless labs, scans, recovery from surgeries and more—topics that are far too difficult to address. Olivia’s campaign, "Keep on SHINING, Olivia," highlights how she so effortlessly radiates joy and positivity, thanks to the unwavering support of a compassionate community. Your encouragement allows her to share her famous hugs and smiles, lighting up the lives of everyone around her. She brings warmth to our hearts each and every day.

    A Community of Support:
    Truly, it does take a village, and we honestly feel beyond blessed to have found that in our family, friends who have become family, and our wonderful community at St. Gabriel's Church & School. On days when Olivia's Rays of Sun shine brightly as she attends class and enjoys her special moments, we cherish those beautiful Rays of Joy. Yet, like the Sun, Olivia also needs protection during cloudy and rainy days, allowing her body to recover and rejuvenate so she can SHINE brightly once again!!

    A Heartfelt Thank You:
    Thank you, from the depths of our hearts, for being such an important part of our lives and for sharing in the love and care we have for our sweet girl Olivia. We are all truly blessed to have you by our side as we continue this journey together and want to take this time to celebrate YOU!, as you have shown her so much love, compassion, and support over the years. You ALL help keep Olivia SHINING brightly as she can!!! Much love and heartfelt wishes of health and happiness for you, and yours. With all our love and deepest gratitude, always & forever!!

    Love, Olivia’s Family-Anthony, Angela, Reese, Mia & Rocco Schneider 🙏💕☀️💚


About this fundraiser

It is beyond humbling, difficult & overwhelming to come to terms with the challenges families face while caring for a critically ill child with no cure in sight. 
Together, we are navigating the complexities of Olivia’s cruel, & debilitating progressive Mitochondrial Disease diagnosis that is unmercifully not slowing down & hopefully be able to help her implement more treatments for her care to lessen her suffering & improve her quality of life. 

These realizations & current obstacles have brought our family many tearful moments & extreme heartache, yet closer together as a family to treasure each day. We truly treat each day we have with Olivia as a blessing & true gift from God. Olivia’s bravery, strength and courage inspire us every day, I don’t know how she does it with such grace, hope & rare complaints, despite her body & organs underperforming & lacking crucial energy to survive. The love & respect we have for Olivia through all this is immeasurable. Her moments of joy, her dreams & hopes for her future keep us going every day & we know she can have a stronger & brighter future because of people & incredible souls like you. 

Currently, Olivias rare Mitochondrial Disorder is progressing in ways we desperately need to slow down to prolong her life, drastically improve her health and her quality of life. The constant testing, ongoing labs, countless medications, implementation of new treatments we are responsible for & the daily medical challenges she faces are absolutely catastrophic for a family in more ways than one, however we remain hopeful we can meet some of her medical needs with her team of generous supporters, kind souls & giving hearts. We sincerely thank you with every fiber of our being. 

Olivia’s Specialists have added more recommendations with necessary plans of continued, and more in-depth ongoing palliative care.

Olivia also requires new safety home modifications to lessen the impact of this disease on her body as well as a ramp & safety rail around her hydrotherapy pool to facilitate safe necessary therapies. We are trying our best to commit to these treatments & modifications so our sweet, brave Lilttle Warrior Olivia can live her best life!!

Olivia is now beginning her regimen for a minimum of 3-4 years of at-home injections of Growth Hormone Therapy each night to assist with just a few of the health conditions she suffers from. This debilitating & progressive disease continues to steal parts & moments of her childhood & it breaks our hearts to watch every single day. 

With a very heavy, humble & grateful heart, the time has come to share more of her story and reach out the best ways we can to support her on these next steps of her long & very challenging journey.

If anyone can find it in their hearts to help us support Olivia’s “Keep on Shining Olivia” Campaign ☀️, we would be sincerely & eternally grateful for any support you may be able to share at this time. This is a very difficult request for us to make, but please know we feel we have no other choice at this time as parents to help in any way we can, so thank you for your understanding & continued support & prayers!! We truly mean it!! 

Your generosity, compassion, ongoing support, & sincere kindness through this unfathomable 5 years are genuinely appreciated & treasured beyond words. Thank you in advance for taking the time to read, care & share. Please know you are all a gift to Olivia & to our family forever. We continually thank you from the bottom of our hearts & are appreciative & grateful beyond words!! 🙏💕💚

Organized by

Olivia Marie Chiancone Schneider

Painesville Township, OH, USA

Organizer