It is beyond humbling, difficult & overwhelming to come to terms with the challenges families face while caring for a critically ill child with no cure in sight. 
Together, we are navigating the complexities of Olivia’s cruel, & debilitating progressive Mitochondrial Disease diagnosis that is unmercifully not slowing down & hopefully be able to help her implement more treatments for her care to lessen her suffering & improve her quality of life. 

These realizations & current obstacles have brought our family many tearful moments & extreme heartache, yet closer together as a family to treasure each day. We truly treat each day we have with Olivia as a blessing & true gift from God. Olivia’s bravery, strength and courage inspire us every day, I don’t know how she does it with such grace, hope & rare complaints, despite her body & organs underperforming & lacking crucial energy to survive. The love & respect we have for Olivia through all this is immeasurable. Her moments of joy, her dreams & hopes for her future keep us going every day & we know she can have a stronger & brighter future because of people & incredible souls like you. 

Currently, Olivias rare Mitochondrial Disorder is progressing in ways we desperately need to slow down to prolong her life, drastically improve her health and her quality of life. The constant testing, ongoing labs, countless medications, implementation of new treatments we are responsible for & the daily medical challenges she faces are absolutely catastrophic for a family in more ways than one, however we remain hopeful we can meet some of her medical needs with her team of generous supporters, kind souls & giving hearts. We sincerely thank you with every fiber of our being. 

Olivia’s Specialists have added more recommendations with necessary plans of continued, and more in-depth ongoing palliative care.

Olivia also requires new safety home modifications to lessen the impact of this disease on her body as well as a ramp & safety rail around her hydrotherapy pool to facilitate safe necessary therapies. We are trying our best to commit to these treatments & modifications so our sweet, brave Lilttle Warrior Olivia can live her best life!!

Olivia is now beginning her regimen for a minimum of 3-4 years of at-home injections of Growth Hormone Therapy each night to assist with just a few of the health conditions she suffers from. This debilitating & progressive disease continues to steal parts & moments of her childhood & it breaks our hearts to watch every single day. 

With a very heavy, humble & grateful heart, the time has come to share more of her story and reach out the best ways we can to support her on these next steps of her long & very challenging journey.

If anyone can find it in their hearts to help us support Olivia’s “Keep on Shining Olivia” Campaign ☀️, we would be sincerely & eternally grateful for any support you may be able to share at this time. This is a very difficult request for us to make, but please know we feel we have no other choice at this time as parents to help in any way we can, so thank you for your understanding & continued support & prayers!! We truly mean it!! 

Your generosity, compassion, ongoing support, & sincere kindness through this unfathomable 5 years are genuinely appreciated & treasured beyond words. Thank you in advance for taking the time to read, care & share. Please know you are all a gift to Olivia & to our family forever. We continually thank you from the bottom of our hearts & are appreciative & grateful beyond words!! 🙏💕💚