Hello!

I've had medically issues since I was born. Shriners as a child/teenage, misdiagnosed repeatedly. They finally diagnosed me with hemihypoplasia (growth cell development issue, my whole left side is a little over 3 inches shorter than my right.) Throughout my twenties things got so much worse. I struggled with pain, fainting, fatigue, bowel and urinary issues, dislocation, muscle/tendon tears, unbalanced/falling. Im now 33, and labeled a "fall risk". The past 6yrs has been a nightmare since I decided to start doctoring again. Misdiagnosed me with MS, treatment for it made me worse. Finally got seen by a geneticist because orthopedic surgeons wouldnt touch me. I have hEDS (connective tissue disease that affects all my joints, muscles, tendons, organs, eyes, and brain) hemihypoplasia, kidney disease, gastroparesis, potts, crps, neuropathy, pre-cancerous cells, and intestinal issues. 3 of my specialists pushed for disability almost 4yrs ago. I quit 2 of my 3 jobs to try to control the episodes and stay off of disability. But as of November 2024 I have not worked. The doctors medically laid me off, and I finally pushed for disability with a lawyer. It's now June and I've went through all I had saved, sold things I did not want to sell, and the little things I've done to get through the rest, im now not able. I no longer have a vehicle, and borrowing or getting rides to and fro doctors and physical therap. Consultation is a week in a half away for intestinal surgery, which the doctors are guessing it will take me 3 to 4 months to heal. Since I do not heal properly. Than after i heal from that, I have to have a spinal implant to block my nerves. I was truly hoping disability would happen around the time my funds ran out. Unfortunetly thats not how things have went. I am now so far behind on everything, with it being progressive I will never get out of this mess. Mentally and physicall I can' handle much more. I know it's hard for everyone right now. Anything will help and I'll be truly greatful!