Hello, my daughter Sophia has struggled since birth, born premature and with a heart condition. She was strong and was fixed (open heart surgery). But last year just before her birthday in June she started to feel sick. In her initial 28 day hospital stay she was diagnosed with HLH a rare condition that is life threatening if untreated. Since then a long 5 month plus journey has started. She gets really high fevers swelling stomach aches and more, her treatments have worked for certain time but then she relapsed. Doctor's are advising for her to get a bone marrow transplant.I'm struggling financially since then I can't work because we have to go to chemotherapy twice a week and the hopital. We've had hard stressful times, we recently lost our vehicle that is our main transportation to clinic. We appreciate any help we could receive and thank ahead of time.
Regards,
Erika (Sophia's mom)
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