About this fundraiser

CRPS -Complex Regional Pain Syndrome.  Did you know CRPS is nicknamed “the suicide disease” due to how unbearable the pain can be?  Many people just want to escape.

I started experiencing this excruciating pain at 12 years old.  I stopped attending school because I could no longer make it through the day.  I lost friends who couldn't understand. I could no longer hug, wear clothes, or shower without feeling like my body was ripping itself apart … and no one could see it.  I no longer wanted to feel anything so I shut down.

i have pain without reason or rhyme.  It is unpredictable and sometimes it controls my life.  I grieve the kid in me that had to try so hard to experience the childhood she deserved.  I fight to live my life.

I've tried  every medication specialists suggested.  I've been in the hospital too many times to count.  I now depend on pain medication for minimal pain relief.  I don't want to be on opioids.  So I have started a new, non invasive treatment, called Scrambler. It's been used for chemo nerve pain and diabetic nerve pain.  It uses electrodes to stop the pain messages between the nerves and the brain.  Scrambler has also been used with success in CRPS, with people like me achieving remission!  My first ray of hope.  Of course, even though it is FDA approved, insurance will not cover it for CRPS.  I may need 30 - 40 treatments to achieve relief - to throw away the opioids and be able to live free of pain for the first time ever in 14 years.

Your donations to help me obtain this treatment, your understanding, your compassion mean the world to me.

 

Organized by

Avice Alderfer

Woodland Park, CO, USA

Organizer