Being sent to Cleveland to have genetic testing done by a rheumatologist and endocrinologist to find out what severe reaction this caused in my DNA basically testing for rare autoimmune disorders.   I've met all qualifications to be diagnosed with XLH but have to finish testing at mayo clinic with my mom for my PCP to confirm. 

update 05/13 every day is getting a little better it has been nearly a month after this crazy event im able to hop on my right side to transfer myself n drag my left foot by to get myself in and out, im attempting to use my walker for as long as I can take it & I’ve got my vision mostly cleared up and only left to face making my left side from hip to toe work correctly again and my brain hurting so bad with the overflow of information. left arm while moving has a new tremor and works at half of the strength it was before. I’m fighting my depression harder than ever trying to adapt to my limited mobility but it’s still 100% better there where I was 30 days ago lying in that bed. I began my PT, ST Monday and cant wait to see where I’m at in another 30 days. insurance is finally overturning so many denials now that I appealed and my wheelchair will be here in a  couple weeks!

update 05/01 upon being transferred from mercy Fairfield (awful experience) to my ARU I found out that my bed was no longer available for me and then I spent five days at home stranded in our room basement just the bathroom and a couple snacks and a computer chair to move around since I can’t walk and after five days at home and one day out celebrating my dad’s retirement, I had collapsed in pain and rushed at 2am to UC for treatment where they again referred me out to inpatient acute rehab or at home rehab rehabilitation.  

I might mention as well that on top of the Autism I also do suffer from neuropathy, fibromyalgia, and degenerative disc disease as well as my PTSD and anxiety with side of traumatic brain eand now left side deficits including non-use of my left leg now. Every day is a new learning period and adjustment and I spend every day from 8:30am-5pm making phone calls trying to clear up this debt. 
 

I have medically withdrawn from school costing me over 5,000 and a semester of time.  
 

Bean closed the shop for over a week trying to help me and transport me to appointments and from hospital and make the room allow me to use computer chair everywhere and cost us 2500

Our main gas saving vehicle is down and our shop still desperately needs a mechanic.  

 

I’m reaching out during one of the most difficult times in my life. Recently, I suffered a severe allergic reaction to an epidural steroid injection in by my l5-S1 which was followed by a fall down my stairs attempting to get my EPI pen when I struck my head ,resulting in a concussion.  Since then, I’ve developed paralysis on my left side. 
 

I’ve just been informed I’m being transferred to an acute rehab facility where I’ll begin the long maybe hopefully short , but difficult & uncertain road to recovery. Doctors estimate it could take a minimum of 10days to 6 months, or maybe never to regain strength and mobility. During this time, I’m unable to return to work, and I’m also still enrolled full-time in school but might be pausing as the blurry vision makes writing impossible but I’m still working toward my dream of becoming a teacher.

I’m creating this fundraiser to help cover:

• Ongoing medical bills and therapy costs
• Equipment needed for home recovery
• Accessibility modifications for living safely
• Basic living expenses while I’m unable to work
• Transportation to and from rehabilitation hospital for family
• Coverage of my insurance & monthly bills

If you’re able to contribute, no matter how small, I can’t express how much it would mean to me. And if you’re not in a position to donate, sharing this page would help more than you know.

Thank you so much for your support, love, and encouragement. I’m staying hopeful, and I know I won’t have to face this journey alone.

With gratitude,

CourtneyLyn Bacher 

 paypal fairycrazy114 

cash app $EdmundPagan 

Zelle 513-518-3746