Only been on this earth for 34 years and my husband 40. We really wish we would have been taught that no matter what you do life…well it's a kick in the teeth sometimes and lately i dont think we have any more teeth.We just want to live our oife somewhat comfortably and i know thats alot but we had veen getting back on our feet after haveing set back after setback. This time though it's a little harder. Anthony my husband has muscular dystroph with CMT type 1 A and as it were he has been disabled for the last 6 years. However this last 2 years have been extremely hard (broke his foot in 2023). He has lost a lot of balance issues and cannot work so I have taken the reigns and also been his care giver. This last year though that's when it's been the worst as the car he bought for us broke down for the 4th and finao time so we gave it back to the bank. This caused me to lose my job which was 25 min away since we could not find me a means of reliable transportation. Saddens us to yave to ask for help but dont know where to turn to.
We just want a better way of life like anybody else. The goal is to get of the rent house that we're in because the floors are falling apart and to fix them we'd have to relocate to have the landlord fix them because it's going to be a long process and then the rent will go up. So looking for a better house so that way he can move a little bit better around without losing all of his independence (I have to walk him through the house so he doesn't fall through the floor or fall in general he can't use his wheelchair here). With that being said also looking to plan b which is to get a vehicle and go back to prior job which they are holding my spot for me to return so that way I can do my job as caregiver and provide for our 2 member family (we also have a fur baby).. sorry if this is mainly ramblings just didn't want to have to come to this as i wish i could stay home with him forever but cost of living doesnt agree to thats o in order to survive we must find a way.
The end goal is to have better housing (even a camper) and a regular income other then his disability check which doesn't pay for much but also get him able to start streaming his games since he can't really do anything else and that is his passion. With help and getting back on our feet is be able to get him set up so that way while I'm working he is also keeping busy without been depressed because his mobility issues let alone the fact that we tried for 13 years to start a family but it's most likely not going to happen so it's only the 2 of us (and our fur baby). We don't have a support system or friends and family we'll when everyone has a family of their own the forget the ones that don't. Thanks to any help and when back on our feet I will in turn give a hand on here to those in need.-A&E
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