Hello,

  Millie is my Granddaughter…. We are trying to raise Awearness and Money for Millie Chaffin she is 14 months old. Millie started having seizures at 8 months old, and was diagnosed with a rare genetic mutation causing something called Pobinds Syndrome. Millie has Refractory Epilepsy and Developmental delays due to her condition and could experience either or both difficulties. Millie was also just diagnosed with a Atrial Septal Defect ASD. which is a very large hole in the top portion of her heart. She will possibly need heart surgery at 2years old. We are trying to raise funds for Millie‘s needs and trying to get a vehicle to transport Millie to and from  hospitals. We also have to see specialists in and out of state due to very little knowledge of her disease. Only 81 cases world wide. My Daughter has had to quit her job and to stay at home to care for millie and she has 3 other children as well. Things are very sung at the moment. Millie is having mulitpul seizeures a day. Anything would help and be much appreciated if you could help my Daughters Family.  Kind words and prayers are always accepted and very much appreciated. God Bless Each and Everyone