We haven’t updated in a while because the last few months have been a whirlwind and to be honest, we never seem to have clear answers. Since July, he has had 6 hospital stays resulting in over 50 days spent admitted. As I’m working on this he’s being admitted again through the ER at All Saints. Stacie has been by his side the whole time. He is blessed to have her as his better half. Now for a true update.
- Liver failure was the initial diagnosis, but it has now rapidly led to kidney failure. His doctor has been waiting all month for the allotted time frame to give him the official diagnosis of end-stage renal failure – and finally got it done today. This will move things along quicker on the Medicare issue. We are very thankful that his doctor is working with us to ensure he has access to the care he needs. Unfortunately, she can only control so much. He needs dialysis 3X per week, but at $3,100 a visit that isn’t feasible. Currently, we get his labs done once a week, I send them directly to the doctor, she determines if he qualifies for emergency dialysis and we move to having him admitted when he does. It has been exhausting for him.
- He was denied Medicaid, currently still working on Medicare, and the disability case still has not been assigned. We initiated it on 4/27/24, and currently, when I check the status, it says it is averaging 408 days for cases to get from start to finish.
Times are hard for everyone, and he didn’t want us posting because he knows people are just trying to survive themselves, but I am sharing the link again in hopes that someone might be able to help! You can also reach out to me if you want to help in any other way with donations, groceries, bills, etc.