Hello! My Mom was diagnosed with ALS on June 1, 2025. Her first symptoms started in March, she rapidly declined and was admitted to the hospital where she got her official diagnosis, and by mid July at the latest she became fully dependent on us for everything. It happened so fast and we were completely blindsided, especially my Mom. We have applied for everything we can from Social Security Disability, disability Medicare and disability Medicaid with denials from all of them. She will only be 62 on December 5th of this year and because she spent her life as a homemaker, she isn't qualified to receive any kind of help. We have gotten what is available to her through the ALS association, but as a family we are all struggling to provide everything she needs as well as providing the absolute best care we can give to her. The problem is we all have physical limitations and it is getting to where a 2 person transfer is needed at all times, which is impossible for us seeing as how the middle sister works everyday as an RN, I have a job as a Host Home Provider/Caretaker for my 21 year old son who has Autism, and our Dad works every day as well not to include trying to maintain our own daily responsibilities as wives and parents. Our baby sister and her little family live with my parents and have for some time. The day she came home and discovered Mom had fallen and had been in the floor for 7 hours, unable to get to a phone for help, she decided in that moment that she was quitting her job and taking care of Mom. So she primarily takes care of our her and our Dad does what he can when he's home. However, caregiver burnout is a reality even though we all help in every way we can to give breaks and help take care of Mom. We are at a point where we need in home caregivers and we need to make modifications to my parents home and purchase equipment to benefit Mom and make it safer and easier to care for her. This requires us to put hospital flooring in the bottom floor of the house where my mom and dad's room, bathroom, and the living room is, which is where my Mom stays. She has a recliner and an old hospital bed, and an Eyegaze device but we need a lift, a bed that suits her needs, and some other things along the way. Our family is tapped out and the truth is our Dad won't be able to work and provide for them for much longer as he is in his 70's and has his own physical limitations that are getting worse. We could really use the help to provide the best for my Mom. The amount I'm trying to achieve would allow us to make the modifications needed, buy equipment needed to safely provide medical care for her, and it would pay for 3 in home caregivers to rotate in and out and care for our Mom for 1 year. Please help us with whatever you can. We would be forever grateful and can provide proof and updates that the money goes to do exactly what I have laid out here. Please help if you can and share, share, share. Thank you!