Urgent- medical crisis need help getting to Mayo Clinic in Rochester Minnesota from San Diego. Trying to get there by any means please help. 🙏🏽🙏🏽🙏🏽

***Please share***

I have EDS - Ehlers Danlos Syndrome  (pathogenic genes for both vascular and classical). I was in a car accident on December 5th and since then have been deteriorating. 
 

My PCP finally put in a prescription for oxygen then retracted it. I’m not getting enough oxygen to my brain and my tissues. I’ve been harmed physically at all the local hospitals in SD and tried to go to an LA ER as well. I’ve been to the ER 5 times now and they have all harmed me further by allowing me to fall, giving wrong meds, refusing oxygen when begging for oxygen and telling them I’m going to pass out- then passing out, etc. There are only a handful of tertiary hospitals that has the correct imaging and  specialists for the rare conditions I have and know what to kin look for and how to diagnose and treat. I’m  followed by multiple specialists at UCSD, they have failed to help me after the car accident which is why this is an emergency now. Having the combination of both rare diseases and an acute medical crisis due to the injury and impact caused the car accident. I  have tried everything going thru the normal channels to get help. Patient advocacy organizations etc. 
 

I have blue shield promise via medi-cal, and have been trying to get them to help me and transport me but they are not helping. I need to do something before it’s too late. I have money coming in from a student loan next week (I’m a student wanting to do medical research) but right now I have no money. 
 

If you have money to donate or lend please help. Or a way to pay for the flights with credit card or miles or any other way  to help please do. 
 

I want to get on a flight with my son asap. Even if I just got to the ER at Mayo Clinic it would be better than slowly dying here. I wanted to do the upright MRI’s but I don’t have enough for that either and I’d have to coordinate sending it to the right radiologist etc. and I don’t have the brain power right now. I’m already having damage from this and I can’t do much for myself.  
 

I’ve also been discriminated against at these hospitals and with EMT’s being part of multiple minority groups and having rare conditions and disabilities. 
 

I can try to get there by car, train, or plane. I just need some help right now before it’s too late. Most of my family doesn’t believe me or care about me.   

I have mast cell activation disorder also,  which has gotten a lot worse rapidly with my tryptase rising to levels of systemic mastocytosis. This is an immune disorder. These are genetically confirmed conditions. Even with all that and trying to explain this I’ve not been helped at ER’s. I have invisible diseases and I don’t present with classic symptoms. That’s why when I try to get help they won’t  give me oxygen and they mistreat me etc. I’ve made complaints to the California Department of  Managed Health Care and my grievance has been approved to be expedited but even that is taking too long and I can’t wait any longer. Every day that goes by I’m getting worse. 


If anyone can please help either donate or lend me the money or part of the money or has some kind of connections with  being able to get a flight for me and my son please help. If you can help post this on another site made for this please help. 
My cashapp is: $MaverickGuzzi 
My Venmo is: @MaverickGuzzi 
To get there I need about 2000$.  For a flight for me and for my son to escort me. For the Uber to get to the airports and to get to the Mayo Clinic. Ideally another 1000$ to be able to get a prescription for the oxygen and get the oxygen for the flight. It is very difficult for me to manage this rn. If anyone can help in any way please reach out. 

Even if there were a way to go by train or car part of the way would be better than just sitting here deteriorating further and further. If anyone can help in any way please message me or DM me 🙏🏽🙏🏽🙏🏽