Jun 05, 2026

Hi everyone 🤍

I wanted to share an update because so much has changed since my last fundraiser post in March.

At that time, I had just received several major diagnoses and was trying to process what they meant for my future. Since then, my health has continued to decline, and my medical team has uncovered even more complications that have changed the course of my treatment.

One of the most significant developments is that I am now living with chronic intestinal failure.

When I last updated everyone, I still had hopes of maintaining nutrition through my digestive system. Today, I am completely dependent on TPN (IV nutrition) & bags of fluid to survive. My body is no longer able to absorb and process enough nutrition on its own, meaning all of my nutrition is delivered directly into my heart through a central line. I also have a PEG tube for venting and draining because of severe gastrointestinal dysfunction.

Living with intestinal failure is difficult to describe unless you’ve experienced it. Every day revolves around infusions, medications, supplies, appointments, symptoms, and trying to avoid complications. There are no breaks from it.

Along with chronic intestinal failure, I continue to battle severe gastroparesis, gastrointestinal, CRPS Type II, Ehlers-Danlos syndrome, autonomic dysfunction, chronic pain, and countless symptoms that affect nearly every part of my body.

As if that wasn’t enough, doctors also discovered an aneurysm in my internal carotid artery along with vascular fistulas that require ongoing monitoring and specialist care. Learning that there are potentially serious vascular complications on top of everything else has been incredibly difficult for both me and my family.

Over the past several months, I’ve undergone additional testing, imaging, specialist consultations, procedures, and treatments. I’ve met with gastroenterologists, pain specialists, pelvic floor specialists, neurologists, vascular specialists, and other members of my care team as we continue searching for answers and treatment options.

One area we are currently exploring is regenerative medicine, including stem cell therapy. While there are no guarantees, we are researching whether this treatment could potentially help with some of the underlying issues contributing to my intestinal failure, gastroparesis, CRPS, and overall quality of life. For someone facing progressive illness and limited treatment options, even the possibility of improvement is worth investigating.

The reality is that the financial burden has become overwhelming.

The costs associated with TPN, central line care, medications, specialist appointments, procedures, travel, testing, imaging, medical equipment, and ongoing treatment continue to grow. Every month brings new medical expenses and new challenges.

Through all of this, my children remain my reason for continuing to fight.

They have watched me endure surgeries, procedures, hospitalizations, and setbacks that no parent ever wants their children to witness. Yet they continue to be my greatest source of strength and motivation. Every decision I make is with them in mind and with the hope of creating more healthy days, more memories, and more time together.

To everyone who has donated, shared my fundraiser, prayed for me, sent messages, or supported my family in any way, thank you. Your kindness has carried us through some of the hardest moments of this journey.

If you are able to donate, every contribution truly makes a difference. If you are unable to donate, sharing my fundraiser can help reach someone who can.

This journey is far from over, but I am still here. I am still fighting. I am still searching for answers. And I am incredibly grateful for every person who continues to stand beside me along the way.

Thank you from the bottom of my heart. ❤️

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