Latest update as of Mar 10, 2026

  • Medical Update – The Last Month Has Been a Lot

    I wanted to give everyone an honest update about what the last month has looked like medically and where things currently stand.

    Over the past several weeks my health has declined enough that my care team made the decision that I needed surgery to place a J-tube so medications can go directly into my small intestine. My body has been struggling to tolerate things normally, and right now I am still dependent on TPN (IV nutrition) for most of my nutrition.

    On March 9th, I went through surgery to have the J-tube placed. The procedure ended up being more involved than expected and required multiple incisions in my abdomen. Recovery has been extremely painful and difficult. Even basic movement has been hard while my body tries to heal.

    Despite how hard this has been physically and emotionally, I’m incredibly grateful to still be here and continuing to fight to get my health back.

    The next few weeks are still very medically heavy. I have several important appointments coming up, including:

    • Post-operative follow-ups to monitor healing from the J-tube surgery
    • MRA scheduled for March 17th to further investigate ongoing vascular concerns
    • Continued specialist appointments to determine why my body has been struggling so much with digestion and nutrition
    • Ongoing monitoring while I remain on TPN

    This past month alone has brought hospital visits, procedures, testing, and now surgery recovery. Unfortunately, the medical bills continue to grow while I am still unable to work due to my health.

    Your support — whether through donations, sharing this page, or simply checking in — truly means more than I can explain. It helps relieve some of the pressure during a time that has been incredibly overwhelming.

    I’m taking things one day at a time and focusing on healing.

    Thank you for being here and standing beside me through this fight. 💙

    Medical Update – The Last Month Has Been a Lot

About this fundraiser

My name is Kristy, and I’m a mother to three incredible kids — ages 15, 11, and 10. Every day, I wake up and fight, not just for myself, but to be here for them. Some days, my body makes even that impossible.

I live with Complex Regional Pain Syndrome (CRPS) — a condition so painful it feels like my body is on fire while breaking and crushing from the inside out at the same time. I also battle thoracic outlet syndrome (I’ve had a rib removed), dysautonomia, vascular Ehlers-Danlos Syndrome (v-EDS), chronic fatigue syndrome, several severe cardiac issues including neurocardiogenic syncope, and hypoglycemia. I’m tube-fed through a dual-bag GJ feeding tube just to survive, and some days, standing or walking is impossible.

My family has done everything they can to support my treatment, but I’m trying to get back on my feet on my own. I have a referral for an intrathecal pain pump, which could finally help me manage my pain and regain a little independence. But even with this, I still need help with medical bills, genetic testing, life-saving devices, Stem cell therapy and training my dog as a service animal.

A service dog would be more than a companion — they could alert me before fainting or dangerous drops in blood sugar, help me regain balance if I collapse, and provide comfort and safety for my children when I’m struggling.

I am asking for help because I want to survive, not just exist, for my kids. I want to be able to help them with homework, cheer them on at their games, tuck them into bed, and show up for every milestone. Every donation, share, and message of support brings me closer to safety, stability, and hope — a chance to keep living alongside my children instead of watching life pass me by.
 

I’ve faced unimaginable pain and loss, but I refuse to give up. Please help me fight for my life and my family.

 

With love and gratitude,

Kristy 

💛 #CRPSAwareness #RareDiseaseWarrior #ServiceDogJourney #MomStrong

Organized by

Kristy Brrientos

Westville, IN, USA

Organizer