So much is happening and fast❤️‍🩹

Mar 21, 2026

Hi everyone 🤍

I wanted to give a real update because a lot has been happening behind the scenes, and honestly… it’s been overwhelming.

Over the past few weeks, I’ve gotten more answers—but those answers have also shown just how complex my situation really is.

I’ve now been diagnosed with multiple serious conditions including vascular Ehlers-Danlos syndrome (vEDS), hypermobile EDS (hEDS), mast cell activation syndrome (MCAS), severe gastrointestinal dysmotility, gastroparesis, malabsorption, neurocardiogenic syncope (which causes my fainting), CRPS, thoracic outlet syndrome, and more.

Because my digestive system is failing, I’m currently dependent on TPN (IV nutrition) and just had a permanent J-tube placed. Eating normally is no longer something my body can handle.

On top of that, doctors found a brain aneurysm in my internal carotid artery along with an AV fistula. I now have to see neurosurgery to determine if I need a procedure to prevent something life-threatening.

My care team is expanding quickly. I’m being referred to neurosurgery, pain management, urology, gynecology specialists, and more—all while trying to manage daily symptoms like severe pain, fainting, and extreme fatigue.

One of the next big steps is switching from my PICC line to a chest port, which is safer for long-term treatment like TPN. This will mean another procedure, more recovery, and more medical costs.

I’m doing everything I can to keep going, but the reality is this is a full-time fight—physically, mentally, and financially.

If you’ve supported me, checked on me, shared my story, or donated—thank you from the bottom of my heart. It truly means more than I can explain.

If you’re able to continue sharing or donating to my fundraiser, it would help me keep getting the care I need to literally survive and hopefully improve my quality of life.

No matter what, thank you for being here

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