Latest update as of Nov 26, 2025

  • 1 week in the hospital

    I never thought I’d be spending my 35th birthday in a hospital bed, hooked to IV nutrition, fighting just to stay conscious — but this past week has been one of the hardest and scariest of my life.

    Over the last few months my health has been declining fast, but this week everything collapsed at once. I’ve been fainting constantly — sometimes without warning, even while lying down or connected to fluids. My heart rate has been unstable and my blood volume dangerously low. My body has been running on empty.

    On day 4 of this hospital stay, my GJ feeding tube had to be removed completely. It had migrated, twisted, and was actually damaging my esophagus. Every attempt at feeding made me violently sick, dizzy, and faint. Even the new tube placement under fluoroscopy failed because my body simply can’t tolerate or absorb feeds anymore.

    Right now I’m dealing with a combination of serious medical conditions that are all crashing into each other:

    ⭐ POTS

    causing severe dizziness, heart rate spikes, blood pooling, and daily fainting.

    ⭐ Neurocardiogenic & cardiac syncope

    forcing sudden drops in blood pressure and unexpected loss of consciousness.

    ⭐ Chronic Fatigue Syndrome / ME

    worsening weakness, inflammation, and post-exertional crashes, making recovery even harder.

    ⭐ Gastroparesis & opioid-induced GI dysmotility

    leaving my stomach and intestines unable to move or absorb food.

    ⭐ Malabsorption & malnutrition

    causing rapid weight loss, low volume, and leaving my body too weak to function.

    ⭐ CRPS

    affecting my upper body, stomach, and back — making any surgery, including a permanent J-tube, very risky.

    All of these conditions fall under severe dysautonomia, meaning my heart, blood vessels, GI tract, nerves, and energy systems can’t regulate themselves.

    Because of this, the surgical team determined that a permanent J-tube is not safe for me.
    So now, for the first time, I’m fully dependent on TPN — IV nutrition — just to survive.

    This is the only way my body can get hydration and nutrients right now.

    I’m sharing this because many people don’t realize how complex and fragile my medical situation has become. I’m fighting every single day to stabilize my body, stay conscious, and get strong enough to return home to my kids. But this level of medical care, the frequent hospitalizations, and the ongoing treatments are overwhelming physically, emotionally, and financially.

    If you’ve donated, shared, prayed, or even just reached out — thank you.
    Your support is helping me get the care I need to stay alive and keep fighting.

    If you feel called to help or share my fundraiser, it truly means the world to me and my family.
    I’m not giving up. I just need help to keep going.

    🧡 Thank you for being part of my support system during the hardest year of my life.


About this fundraiser

My name is Kristy, and I’m a mother to three incredible kids — ages 15, 11, and 10. Every day, I wake up and fight, not just for myself, but to be here for them. Some days, my body makes even that impossible.

I live with Complex Regional Pain Syndrome (CRPS) — a condition so painful it feels like my body is on fire while breaking and crushing from the inside out at the same time. I also battle thoracic outlet syndrome (I’ve had a rib removed), dysautonomia, vascular Ehlers-Danlos Syndrome (v-EDS), chronic fatigue syndrome, several severe cardiac issues including neurocardiogenic syncope, and hypoglycemia. I’m tube-fed through a dual-bag GJ feeding tube just to survive, and some days, standing or walking is impossible.

My family has done everything they can to support my treatment, but I’m trying to get back on my feet on my own. I have a referral for an intrathecal pain pump, which could finally help me manage my pain and regain a little independence. But even with this, I still need help with medical bills, genetic testing, life-saving devices, Stem cell therapy and training my dog as a service animal.

A service dog would be more than a companion — they could alert me before fainting or dangerous drops in blood sugar, help me regain balance if I collapse, and provide comfort and safety for my children when I’m struggling.

I am asking for help because I want to survive, not just exist, for my kids. I want to be able to help them with homework, cheer them on at their games, tuck them into bed, and show up for every milestone. Every donation, share, and message of support brings me closer to safety, stability, and hope — a chance to keep living alongside my children instead of watching life pass me by.
 

I’ve faced unimaginable pain and loss, but I refuse to give up. Please help me fight for my life and my family.

 

With love and gratitude,

Kristy 

💛 #CRPSAwareness #RareDiseaseWarrior #ServiceDogJourney #MomStrong

Organized by

Kristy Brrientos

Westville, IN, USA

Organizer