Latest update as of Dec 10, 2025

  • Week 3 in the hospital: New Diagnosis, NJ Feeds, Labs & Palliative Care

    This past week has been one of the hardest and most defining weeks of my medical journey so far. I wanted to share an honest update so everyone who has supported me understands what is happening and why your help means more than ever.



    🩻 Major Diagnosis Update: Intestinal Pseudo-Obstruction

    After weeks of vomiting, rapid dehydration, fainting spells, and being unable to tolerate my tube feeds, the hospital performed a special X-ray of my stomach and small bowel.

    The results showed:
    • Delayed small bowel transit (took 4–4.5 hours instead of 1–2)
    • Weak, infrequent intestinal contractions
    • Small bowel loops beginning to dilate
    • Findings consistent with intestinal dysmotility/pseudo-obstruction

    This means my intestines are no longer moving food or formula the way they should. My body acts like it has a blockage, even when there isn’t one, because the nerves and muscles in my intestines are failing.

    This explains my constant vomiting, my extreme weakness, my weight loss, my dizziness, and why tube feeds keep making me sick.



    🩸 Lab Update: Anemia & Malnutrition

    My bloodwork this week also showed:
    • Hemoglobin: 11.1 (low)
    • Low red blood cells
    • Low hematocrit

    This is anemia caused by malnutrition and chronic illness.
    It makes everything harder — the headaches, the fainting, the fatigue, the weakness. My body is fighting every second to function.



    🥤 Nutrition Update: NJ Feeds at 10 mL/hr

    Because my intestines cannot handle normal feeding, they are restarting my NJ tube feeds at just 10 mL per hour — literally a tablespoon an hour.

    Even this small amount risks causing vomiting or worsening pseudo-obstruction. This is why TPN and medical nutrition support have become essential for me.



    💛 NEW: Palliative Care Team Assigned

    As of today, I’ve officially been placed under palliative care.

    This does NOT mean hospice or end-of-life care.

    Palliative care is for people with serious medical conditions who need extra support, better symptom control, and help navigating complex treatments.

    For me, this means:
    • Help managing my nausea and pain
    • Help coordinating nutrition (TPN + NJ feeds)
    • Monitoring my severe GI dysmotility
    • Support for the constant dizziness and fainting
    • Advocacy for getting the right care
    • A team focused on helping me have quality of life

    This was not an easy step, but it was a necessary one. I am still fighting. I am still trying to get home to my kids. But my body needs more support than a standard hospital team can give.



    ❤️ Why I Still Need Help

    I’ve been in the hospital for over 3 weeks with:
    • No income
    • Ongoing medical needs
    • TPN, tube feeds, and supplies
    • Travel costs and home bills piling up
    • Medical equipment needed for when I go home
    • Three kids counting on me
    • A service dog waiting for me
    • A body that is trying so hard to keep going

    Every donation — no matter the size — truly helps me survive this and gives me a chance to return home safely with the care I need.



    💛 Ways to Help

    Fundraiser:
    👉 https://giveahand.com/fundraiser/kristyys-fight-2-keep-goin

    Amazon Medical Wishlist:
    👉 https://www.amazon.com/registries/gl/guest-view/GU0EF2SNP0JP?ref_=cm_sw_r_apin_ggr-subnav-share_HPD90Y6GW8JMB8SJESBP_1&language=en-US

    CashApp: $KristyyAshleyy
    PayPal: Kbarrientos27
    Facebook Pay: Kristyy Ashleyy

    If you can’t donate, sharing my fundraiser helps more than you know.
    Thank you to everyone who continues to lift me up during the most frightening and overwhelming experience of my life. Your love and support are helping me keep fighting. 💛✨


About this fundraiser

My name is Kristy, and I’m a mother to three incredible kids — ages 15, 11, and 10. Every day, I wake up and fight, not just for myself, but to be here for them. Some days, my body makes even that impossible.

I live with Complex Regional Pain Syndrome (CRPS) — a condition so painful it feels like my body is on fire while breaking and crushing from the inside out at the same time. I also battle thoracic outlet syndrome (I’ve had a rib removed), dysautonomia, vascular Ehlers-Danlos Syndrome (v-EDS), chronic fatigue syndrome, several severe cardiac issues including neurocardiogenic syncope, and hypoglycemia. I’m tube-fed through a dual-bag GJ feeding tube just to survive, and some days, standing or walking is impossible.

My family has done everything they can to support my treatment, but I’m trying to get back on my feet on my own. I have a referral for an intrathecal pain pump, which could finally help me manage my pain and regain a little independence. But even with this, I still need help with medical bills, genetic testing, life-saving devices, Stem cell therapy and training my dog as a service animal.

A service dog would be more than a companion — they could alert me before fainting or dangerous drops in blood sugar, help me regain balance if I collapse, and provide comfort and safety for my children when I’m struggling.

I am asking for help because I want to survive, not just exist, for my kids. I want to be able to help them with homework, cheer them on at their games, tuck them into bed, and show up for every milestone. Every donation, share, and message of support brings me closer to safety, stability, and hope — a chance to keep living alongside my children instead of watching life pass me by.
 

I’ve faced unimaginable pain and loss, but I refuse to give up. Please help me fight for my life and my family.

 

With love and gratitude,

Kristy 

💛 #CRPSAwareness #RareDiseaseWarrior #ServiceDogJourney #MomStrong

Organized by

Kristy Brrientos

Westville, IN, USA

Organizer