Gracie. Was born with a very rare syndrome MFDM which stands for Mandibulofacial dysosyosis microcephaly syndrome.  Abnormalities  of the head and face.  Undevelopment or the middle face cheeckbones, lower jaw ,ears are small and abnormal  shaped which cause problems in ear canal.She has difficulties  eating, drinking, sleeping.Also she has hearing defects.She will be fitted soon for hearing aids ,So she will be able to hear and hear sound to learn to talk.Her Parents are so blessed with Family , friends and a loving Church  Family  also.Mom stays home since Gracie will need 24 hour care and they also have a 5 year-old Son who is very healthy  and he helps soo much.Dad works and has to miss work to attend lots of doctors  appointments  out of town which requires some over night stays too.Im hoping to raise funds So they will have money for travel .lodging and food when they travel to give Gracie the Best Care to help her have a good quality  of life and less stress in Mom and Dad.Im her Grandma  and I take off work to help as much as I can.So this is my gift to them to help even more.