Latest update as of Aug 16, 2025

  • Update

    It has been a little over a year since Owen started his Halo journey. Owen is doing amazing with physical therapy and occupational therapy. Owen also suffered from hearing loss due to the Chemotherapy, we are now going to start using a hearing amplifier along with speech therapy to help Owen learn the sounds that are hard for him to hear. He also is seeing a dental specialist for his teeth that were affected by radiation and chemotherapy. This is an addition to all of his regular check ups for Oncology, neurology, orthopedic specialist, and primary care.
    Even with all of the different specialists Owen is handling everything like the warrior he is. Never complains about having to go to another hospital or another doctor visit and doing more tests. He keeps a smile on his face and tackles each challenge one step at a time.
    With all of Owen’s appointments and needing to be at Mayo Clinic, we made the decision to move closer to his Care Team. After 3 years of living in hotels for months at a time and Furnished homes, it is an amazing feeling to have a place to call home again. It was not an easy decision to move away from our family, but we felt this would be the most beneficial decision for Owen.
    We are starting all over with furniture and basic everyday essential items, we also have car repairs needing to be done from driving 106 miles multiple times a month to Mayo Clinic and back. Any little bit of help would be such a blessing to help us get back on our feet.
    We can not thank our lord and all of our supporters enough for all of the help along the way and are so blessed to come this far. It would not have been possible without all the love, support and prayers from everyone.

    Update

About this fundraiser

At a 1 ½ years old, Owen, was diagnosed with an Ependymoma cancerous brain tumor.  Owen is now 4 years old and cancer free, and So full of life and joy, he shows us what unbelievable strength he has and is a true warrior! Owen has been through so much at such a young age but keeps a smile on his face and everyone around him.  He is such an amazing big brother! 

But his fight is not over yet.
After 6 weeks of radiation treatment and 4 rounds of chemotherapy, Owen will be having a spinal neck fusion on July 24th at Mayo Clinic. He will have 3 different procedures, first they will go in through the front of his neck for the spinal neck fusion and place rib bone grafting to straighten the vertebrae in his neck from where the tumor was removed, then he will be placed in a halo traction neck brace, 3 weeks later they will complete the spinal neck fusion in the back of Owen’s neck with more rib bone grafting. Owen will stay in the halo traction neck brace for 3 months following the procedures before removal of the halo traction neck brace.  He will need physical therapy, and speech therapy after surgery. 
We are asking for help with hotel cost, bills, and meals. We currently live 106 miles from Mayo Clinic and traveling that far in Owen’s traction Halo neck brace is not ideal or very safe, so staying in Rochester for the 3 months while Owen is in the halo traction brace would be best for him. We also have a 2 year old daughter, Maya, and keeping our family together through this very difficult time is our goal. Any help and prayers for Owen and our family is greatly appreciated. 

Thank you for taking the time to hear Owen’s story. 
Godbless. 

Sincerely, 

Owen and Family. 

Organized by

Jessica

Minneapolis, MN, USA

Organizer