Ian is my 25 yr old who has been struggling with the reprocussions of an Arnold Chiari Malformation the last 2.5 years. He had already had surgery for it at age 14 and had done fine for years. He then started developing severe headaches again, double vision, nausea with position changes. An evaluation showed that the bone he had removed at age 14 had regrown. He required a second surgery. There were complications after the 2nd surgery requiring him to go back for a third brain surgery October 2021. Since then he has continued to be plagued with headaches from the moment he wakes up until he goes back to bed. He now has some neurological issues after the brain surgeries so his memory is poor and has some speech issues. Physical exertion makes the pain unbearable which has debilitated him. He has been admitted to the Hospital over 20 times. We have tried conventional and no conventional methods of pain management. The only success has been from nerve blocks. The last two times he got a full 20 min where he had no pain. He started to cry he was so happy. There is a neurostimulator device that his neurologist believes would also be effective but he needs 4 leads instead of the normal 2 and that is only done in New Jersey. We submitted his info to the program and he was accepted but the only insurance they don't take is ours. They said no worries they would let us pay out of pocket but that is $80,000. I don't know about everyone else but I don't have that laying around or in my sock drawer! Lol! So this is why I thought about doing this. Anything would help and we are eternally grateful for everyone. The last 2.5 years have been such a battle for him and all he wants is his life back. Thank you to everyone who has helped him through this struggle. All the family, friends, physicians, APC'S, Nurses, CNA'S, mine and my husbands Co workers who have been supportive through all this, people who have already donated to him and Advocate Aurora St Luke's who strive to provide excellent care every time he is admitted ❤️
About this fundraiser
Organized by
Ian Jauregui
Waukesha, WI, USA
OrganizerSimilar fundraisers
Make a difference by donating to similar fundraisers.
Please donate to comment.
{{dame(anonymous, user, donor_name)}} | {{curr(amount,'USD')}}
{{created_at_rel}}{{note}}