Dernière mise à jour en date du Jun 11, 2026

  • Appointment with Surgeon

    I decided yesterday that for my mental health, I needed some time in sun near some water, so my bonus kiddo & I went to a local beautiful green space here in Tulsa and spent the day in the sun, in the splash pad areas. It was exhausting and physically took it all out of me, but it cleared my mind and made it a little bit easier to breathe easily.
    The outing for sun & some water was absolutely necessary for my mental health, but I’m paying for it today. I was up most of the night with stomach upset & issues.
    The time in the sun was very much worth it.

    Tomorrow morning is my appointment with the surgeon here in Tulsa. I believe that this appointment will be scheduling surgery, so I’m both anxious and hopeful. We’ll also be discussing the feeding tube that goes directly through a tube that is surgically attached to my stomach (it will be connected to my jejunum which is part of my small intestine, to bypass my stomach completely) or doing TPN (getting nutrition through a port that will be surgically placed).
    I am overwhelmed and terrified and I’m afraid to be excited or feel positive about anything. Menolly has been keeping me from indulging in the worst of my pessimism/my mistrust of medical professionals. I don’t think I would be surviving this if I didn’t have her at my side, holding my hand, and walking through these flames with me.

    The surgeon in Virginia no longer sees new SMAS patients virtually- all appointments have to be in-person. Because so many of the people who have this rare condition are turning to Dr.Fowlkes, appointments are very far out. Additionally, he requires an entire battery of tests & procedures be completed prior to seeing you, so I have to get all of that completed before anything else can move forward. At this point, I am too sick to wait while getting all of that accomplished, so if I can get the surgery that will keep me alive for the time being, I am going to do that and then I will go to Dr.Fowlkes for a revision and to fix everything (the DDJ operation has a fairly high failure rate among sufferers, but it may be able to buy me some time. I also have to figure out how to pay for everything that insurance doesn’t cover.

    We are so grateful for all of your support to this point. The love and support of all of you has helped keep me afloat.

    If you are able and can spare anything, I’m linking my fundraiser. It all goes a long way to helping make this time and this struggle easier and lift a weight from my shoulders.
    If you are unable to donate, I truly appreciate everyone who shares (and has shared) the fundraiser.
    Every little bit helps.

    Love you all so much!💜💜

    Appointment with Surgeon

À propos de cette collecte de fonds

My name is Sunny Elmore, I am a substitute teacher and I perform/work at Renaissance Festivals. After taking my life back, falling in love with working out, and healing my relationship with food, I had lost from 309lbs down to 180 in 3 years. On April 13, 2026, I was diagnosed with a life threatening condition called SMA Syndrome and moderate-severe malnutrition.

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I had been slowly getting sicker over a year- having nausea all the time, unable to eat much, and throwing up more often. I lost my appetite, had no energy, and my immune system tanked- I was working as a substitute teacher, but I seemed to be getting extremely sick all the time.

The morning of Wednesday, April 8th, I became so sick that I spent the day on the bathroom floor or crawling into the shower. I could not stop throwing up and nothing I did would relieve the burning, throbbing, breaking pain in my stomach and chest. My girlfriend insisted we go to the ER by Thursday evening because I was still so sick and not getting better. Once there, they found the SMA Syndrome.

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SMA Syndrome is a condition where the Aorta and the Superior Mesenteric Arteries compress/pinch the duodenum, causing an obstruction where food and liquids cannot move past. It causes debilitating pain, nausea, and vomiting. I have less space than the eraser on the end of a pencil for anything to move out of my stomach.

In order to survive, I will require a major operation to re-route my stomach and intestines as well as a feeding tube directly into my jejunum that is accessed from outside of my belly.

I have lost 60lbs in 4 months while trying desperately to get enough calories to survive. I continue to drop weight no matter what I do or how much I struggle to get enough nutrition. I am fading away. 

I sip protein shakes all day long, just to keep my body barely functioning, but even then I am unable to ever get enough, because I am still throwing up every day and unable to have anything in my stomach for long.

Because of the effects of the now severe malnutrition, I have brain fog and I am forgetting words. I have had to begin using a cane because my balance is really bad. I am also chronically dehydrated and having extremely bad tachycardia (palpitations) because keeping my electrolytes balanced is so difficult because I cannot handle anything in my stomach. I have had to stop working as a substitute teacher because it is not safe for me to be responsible for large groups of children when I am struggling to think straight.

The majority of my adult life was spent as the 24/7 caregiver for a disabled & elderly family member(s), and as such, I do not qualify for short term (or long term) disability to get me through this. The costs for appointments, procedures, prescriptions, the special formulas that are needed to help provide nutrition, the medical equipment (I will likely need a wheelchair soon and will have to rent one), in addition to the basics like rent, electricity, etc. are just piling up and causing an additional stress.

I am waiting on a surgeon to see me and be willing to take on my very rare case and for insurance to approve the surgery. Without intervention, this condition will kill me, but I have hope that I will be able to get the treatment necessary to keep me alive, and even hopefully thriving.

There are 3 specialists in the world doing the cutting edge treatments for SMA Syndrome, but the nearest one is located in Virginia (the others are LA, and The Philippines), and I am trying to get an appointment with the specialist in Virginia. That will have travel costs associated with it.

I don’t want to die, and I will continue fighting with everything in my being to live- I have so much to live for.

If you are able at all to spare any funds, they would be so greatly appreciated. If you don’t have any money, then please just share the link. Finding ways to survive financially while I survive physically is so much additional stress.

Thank you all so much for reading this far!

Organisé par

Sarah Elmore

Tulsa, OK, USA

Organisateur