We never wanted to ask for help but I’m worried that soon we will have no choice. A’zlia has a chromosomal abnormality, a partial duplication of chromosome 7q32.3 to 7q36.3 and 21q11.2 to 21q21.3. There has been no one in the world born with A’zlia’s duplication. with that being said she gets compared to children that have full duplications of chromosome 7q and 21q. With her chromosome 7q32.3-7q36.3 can have congenial heart disease, feeding difficulties, growth failure, microcephaly, non specific dysmorphic features, global developmental delays, behavioral issues, skeletal anomalies, seizures, optic nerve atrophy and strabismus. With chromosome 21q11.2-21q21.3 she could have  developmental delays and chronic heart disease.  So far a’zlia is being monitored closely for seizures, she is at high risk. We had some minor heart issues when she was born but since then they resolved themselves but her inferior vena cava is smaller but is functioning normally! A’zlia does have feeding difficulties she had a g-tube placed on October 1st of 2021. She has had growth failure multiple times until recently we got her on a formula that is helping her gain weight properly! A’zlia did have microcephaly (small head circumference) but now her head is in the 50th percentile!!! A’zlia has a hand full of dysmorphic features such as low set ears, sandal gap toes, almond shaped eyes, tight labial frenulum (upper lip tie), prominent upper gum, severe IUGR (Intrauterine growth restriction). A’zlia does have global developmental delays (not walking, talking, or eating). A’zlia also has behavioral issues, it can be extremely hard for her to regulate her emotions. Miss a’zlia does have skeletal anomalies, she has hypo plastic thumbs. The joints in her thumbs did not develop correctly so she has extreme mobility issues in her thumbs, she cannot bend them! A’zlia is also currently waiting on her appointment with the ophthalmologist to see if she has optic nerve atrophy and strabismus, but so far she is showing signs. With all of that being said a’zlia is most likely never going to walk, talk or eat. Insurance is giving us an extremely hard time currently they have fought us on her wheelchair, sleep safe bed, and even her oxygen for obstructive and central sleep apnea! A’zlias doctors are fighting with us to get a’zlia all the equipment she needs but so far we are having no luck! This funding is to help get a’zlia the things she needs that insurance won’t cover, such as a wheelchair, sleep safe bed, and to get toys adapted so that miss a’zlia can have toys too! If the judge rules in our favor for her wheelchair and bed this money would go to funding a power wheel that can be adapted into a button so a’zlia can drive it, or the equipment that is considered “toys” and not medically necessary!