Hi everyone,

this is Jade speaking, well, typing. It took a lot to even begin to think about asking for help like this. I’ve had to in the past when battling my on-going medical mystery and I had hoped I wouldn’t ever need to again.

The current most important thing is recovering from my second battle with septic cdiff. Sepsis does serious damage to the body. The circulation and strength in my hands and feet is radically altered. I am weak and I am weary. I plan to recover  from the comfort of my own home, and avoid another hospital admission at all costs. This is detrimental as my risk of hospital acquired Infection and even death is at an all time high. Not to mention to trauma of an inpatient stay on both myself and Dylan. 

things have gotten worse, and with that comes the reality that we are struggling with make ends meet right now in the midst of complex and expensive medical needs. 
in 2024 Jade was diagnosed with an ultra rare form of vasculitis, called Bechet’s Disease. It is uncommon in general but even more rare in the US. Typically affecting people from Turkey, and other folks who have genetic ties to the Silk Road region of the world. 

Pain is transformative. But it’s becoming less temporary these days. I have now established medical care with specialists ranging from Neuro-immunology, Infectious disease, transplant medicine (I am an approved for a gut microbiome transplant post severe cdiff infection within the coming months.) rheumatology, general neurology, internal medicine, GI, and more to come. The nature of Bechet’s in the brain/spine is poorly understood and hard to find on traditional imaging like MRI & CT. I need more advanced testing than non-specialists can give. That’s where neuro-immunologic medicine comes into play. 

 I’ve faced countless misdiagnosis, medical gaslighting and abuses over the years. I now have the rare opportunity to fight this disease and its co-morbidities with people who actually know what they’re doing. And a community of friends and family
 

I refuse to become a sad statistic, I refuse to allow medical neglect to worsen my already damaged body. I have a full life to lead and my health is my biggest priority. 
 

Your donations will cover many things, namely genetic testing done through an independent lab, transportation and the ever growing co-pays, healthy groceries and adaptive kitchen tools (I’m losing function in my hands, and as a chef it’s devastating but as a creative I see it as a chance to hone old skills using new techniques) general survival in what is truly an insane economy to be seriously ill. 
 

We both work, my job is a little up in the air right now as I am still very weak and sick, a full return to the office could take a moment. Dylan works his butt off as a gardner and landscaper for a reputable company here in Detroit, he’s good at what he does. He is also exploring the idea of returning to school in an effort to find a better paying job. I respect it deeply and want to find ways of making sure he is ok even if I am not doing well. 
 

I will be making a practical amazon wishlist as well for those who would feel more inclined to show support to us that way. 
It will have household Goods, cleaning/infection control supplies/nutrition support/personal care products/ and other required items.  
 

please donate If you are able. I know times are tough out there right now. So please do not put yourself out on my behalf. Otherwise, please keep the virtual hugs and kind messages coming. I read all of them and they mean more than I can say. 
 

thank you from the bottom of our hearts 

Jade Wollin-Welch & Dylan Welch