I am currently struggling to make ends meet with my ongoing medical costs in a barely-single-income household. I‘m already diagnosed with some chronic illnesses (like Classical Ehlers Danlos Syndrome) and moderate autism, but am now going through the costly diagnostic process of MS. Unfortunately, we don’t qualify for any financial aid and SSI/SSDI is not an option for us (thank you asset and marriage restrictions). My insurance is very nice, but it doesn’t cover enough to keep me afloat.

I have multiple appointments per month as is – more now with whatever is happening neurologically – and medications, diagnostics, labs, equipment, etc. I’m considering foregoing my weekly infusions that help me survive Florida because I have to cut costs. I feel like I'm drowning in capitalism lol. Any amount truly helps!

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What I Have to Pay Off (Jan 2023 - August 2024) – $5,400

• $400 – sleep study (2023)
• $140 – primary care appts (7 @ $20ea)
• $520 – specialist appts (13 @ $40ea)
• $90 – rheum (specialist) appt with FMLA paperwork (1 @ $40ea + $50 fee)
• $140 – psychiatrist appts (7 @ $20ea)
• $820 – therapist appts (41 @ $20ea)
• $0 – women's health appt (1 @ $0ea)
• $1914 – weekly infusions (58 @ $33ea)
• $600 – yearly infusion deductibles (2 @ $300ea)
• $80 – adhd diagnostic appt
• $300 – ASD re-eval for accommodations and insurance
• $396 – monthly medications (14 @ $21ea pick up, 6 @ $17ea pick up)

Upcoming Doctor's & Medicine Costs (Sept - Jan 2025) – $6,873-6,953

• $40 – primary care appts (2 @ $20ea)
• $80 – specialist appts (2 @ $40ea)
• $6000 – MRIs (3 @ $2000 currently an estimate)
• $20 – psychiatrist appts (1 @ $20ea)
• $80-160 – therapist appts (3-7 @ $20ea)
• $495 – weekly infusions (15 @ $33ea)
• $68 – monthly medications (4 @ $17ea pick up)
• $90 – rheum (specialist) appt with FMLA paperwork (1 @ $40ea + $50 fee)

What I Need Soon – $328

• $328 – SmartDrive roller replacement kit [my current rollers are worn down]

None of this takes into consideration my lost wages from missing work due to my flare-ups. I’ve lost about 700+ hours in the last two years, but I’ve made it work and will find my own way to make up those hours 🫶🏼

LAST UPDATED: SEPT 19TH