Hello! ♥ My name is Ali! I have been diagnosed with Classical Ehlers Danlos Syndrome and Autism Spectrum Disorder (Level 2/Substantial Support) — among other things — and I am currently struggling with all aspects of life, but especially with ongoing medical costs! Unfortunately, I don’t qualify for any financial aid as I am right above the cutoff and SSI/SSDI is not currently an option for me. My insurance is very nice, but it doesn’t cover nearly enough, and - as of 2026 - has stopped covering a lot of what I need. I am working two part-time jobs the best that I can, and have an Etsy shop, but I cannot seem to catch up on my medical debt. My husband and I really want to buy our house in the next year and my past medical bills are a large part of why we are not getting the mortgage amounts we would like.

I have multiple appointments per month as well as medications, diagnostics, labs, equipment, etc. I feel like I'm drowning in capitalism lol. Any amount truly helps; never underestimate the power of $1 — and shares on social media help a ton, too! (I am about to post a TikTok that I would love if you could share, or follow me so I can monetize)

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What I Have to Catch Up on Paying Off (January 2023 - December 2024) – $7,754

• $600 – yearly deductibles ($300ea) [required to pay before receiving services]
• $540 – 2023 full-timer insurance monthly costs (12 @ $45ea)
• $576 – 2024 full-timer insurance monthly costs (12 @ $48ea)
• $400 – sleep study (2023)
• $160 – primary care appts (8 @ $20ea)
• $600 – specialist appts (15 @ $40ea)
• $180 – rheum (specialist) appt with FMLA paperwork (2 @ $40ea + $50 fee each)
• $180 – psychiatrist appts (9 @ $20ea)
• $900 – therapist appts (45 @ $20ea)
• $0 – women's health appt (1 @ $0ea)
• $2508 – weekly infusions (76 @ $33ea)
• $80 – adhd diagnostic appt for accommodations and insurance
• $300 – ASD re-eval for accommodations and insurance
• $480 – monthly medications (18 @ $21ea pick up, 6 @ $17ea pick up)
• $250 – brain MRI

What I Have to Catch Up on Paying Off (January 2025 - December 2025) – $3,625.25

• $300 – yearly deductibles ($300ea) [required to pay before receiving services]
• $624 – 2025 full-timer insurance monthly costs (12 @ $52ea)
• $80 – primary care appts (4 @ $20ea)
• $70 – primary care appt with FMLA paperwork (1 @ $20ea + $50 fee)
• $200 – specialist appts (5 @ $40ea)
• $40 – psychiatrist appts (2 @ $20ea)
• $50 – psychiatrist NCNS fee [even though I cancelled correctly…] (1 @ $50ea)
• $920 – weekly infusions (23 @ $40ea)
• $900 – weekly infusions (18 @ $50ea) [price increase in August of 2025]
• $204 – monthly medications (12 @ $17ea pick up)
• $0 – bloodwork (1 @ $0)
• $50 – good noise cancelling headphones  to manage sensory overload (1 installment @ $50ea)
• $187.25 – Telo Canes

What I Have to Catch Up on Paying Off (January 2026 - February 2026) – $1,278

• $400 – yearly deductibles ($400ea) [required to pay before receiving services]
• $200 – 2026 part-timer insurance monthly costs (2 @ $100ea)
• $628 – fees for infusions that insurance did not tell me was out of network :/ (2 @ $314ea)
• $10 – monthly medications (2 @ $5ea pick up)
• $40 – specialist appts (1 @ $40ea)
• $100 – good noise cancelling headphones  to manage sensory overload (2 installments @ $50ea)

Upcoming Doctor's & Medicine Costs (February 2026 - April 2026) – $1,364

FEB

• $100 – 2026 part-timer insurance monthly costs (1 @ $100ea)
• $40 – specialist appts (1 @ $40ea)
• $70 – primary care appt with accommodations paperwork (1 @ $20ea + $50 fee)
• $14 – monthly medications (1 @ $14ea pick up)

MAR

• $100 – 2026 part-timer insurance monthly costs (1 @ $100ea)
• $40 – specialist appts (1 @ $40ea)
• $14 – monthly medications (1 @ $14ea pick up)
• $50 – good noise cancelling headphones  to manage sensory overload (1 installments @ $50ea)
• $250 – uninsured monthly/biweekly infusion (1 @ $250ea) [depends on how hot it gets in mar]

APR

• $100 – 2026 part-timer insurance monthly costs (1 @ $100ea)
• $1000 – holter monitor coinsurance (unknown amount but probably close to $1000)
• $40 – specialist appts (1 @ $40ea)
• $14 – monthly medications (1 @ $14ea pick up)
• $50 – good noise cancelling headphones  to manage sensory overload (1 installments @ $50ea)
• $250 – uninsured monthly/biweekly infusion (1 @ $250ea) [depends on how hot it gets in apr]

What I Need Soon – $3,328

• $328 – SmartDrive roller replacement kit [my current rollers are worn down and I have put this off for too long]
• $3000 – approx. interest / fees

None of this takes into consideration my lost wages from missing work due to my flare-ups. I’ve lost about 1000+ hours in the last three years, but I will find my own way to make up those hours 🫶🏼 Thank you so much for visiting and/or donating and thanks for your support ♥

LAST UPDATED: 17TH FEB 2026