Latest update as of Aug 03, 2023

  • Mayo Clinic Appointment

    Well had a CT scan today and it is completely clear! Which is great news although surprising.
    So we are back to square one because I’ve still had multiple strokes and a shunt in my heart.
    So now I have an appointment with Neurology tomorrow and a Geneticist next week.


About this fundraiser

My life completely changed on May 2 2023, after having an MRI for what we thought would be MS it was discovered that I’ve had multiple strokes.  Since then I’ve had extensive testing, lost my job, stumped 2 cardiologists and finally have an appointment at Mayo Clinic on Aug 3rd.  Thankfully I start a new job on August 7th but as of now I’m struggling and running out of resources.  Being 35 with two minor children it has been a struggle to keep things moving  I have filed for disability but a decision can take years  

We are currently suspecting HHT & a PAVM. Strangely this does not account for the pain and neurological issues that have progressively gotten worse over the years. So once my heart/lungs are fixed we will be back to square one. 

Organized by

Andrea Pipp

Midlothian, VA, USA

Organizer