I moved to TX with my boyfriend about a year ago from NE where I was healthy & happy & my body was completely fine. Since June 2025 I’ve had symptoms start with red bumps on back of neck & severe pain in my neck like a twisting/pulling/choking sensation & red blotches & deep red marks were showing up on left side of neck. Since then I’ve gotten drastically worse, had to quit working in August bc the pain has radiated throughout my entire body from the top of my head down to my feet. We’ve seen 3 dermatologists, 2 primary care doctors, 2 pain management doctors, 1 neurologist, 12 trips to the ER, 2 ambulance rides & STILL am undiagnosed I cannot care for myself any longer. Whatever this disease/condition is it is slowly killing me. I can’t sleep, eat solid foods, my eyes, ears, throat, nose and mouth are all affected as well & I can’t lay down, stand or sit for long periods of time bc the pain becomes unbearable & it gets hard to breathe & swallow. When I rest my head, my head pushes itself involuntary & the twisting & contorting runs to my groin, bowel, uterus & down my legs to my ankles & feet & I have approx 30 little sores that itch like crazy & HURT. My body is slowly dying.  

My boyfriend & I got married so we could have his insurance on me but for a month now he’s not been able to work bc he’s my sole caretaker. There’s no one else here in TX, it’s just him & I & even with insurance the bills have piled up to 10s of thousands of dollars & we cannot afford to pay rent/car payments. 

I know it’s a lot to ask of anyone given this hard economic time but even $5 helps out more than you could ever know. We do not have many resources like disability, etc bc Ive lived in NE my entire life & have no job history in TX so they won’t help. F
We‘ve been doing all the research trying to find out what this could be & booking appts for specialists, applied & been denied from Mayo Clinic so I’ve appealed that & am trying to get them to accept me, my sister has contacted NORD (national organization for rare diseases) but everything is a waiting period. Neurologists are scheduling out 6 months. I’ve been waiting on a rheumatologist for months now & the referrals sent by 1 primary were denied bc she MISDIAGNOSED with “chronic body pain“ & you cannot have a diagnosis going in. They will not see me bc they need to diagnose me so I’m in the process of getting new referrals from my pain management doc.

We‘ve spent hundreds if not thousands on like 30 different medications & not ONE has helped. 

I am only 40 & have a lot of life left id like to live so ANYTHING donated is beyond appreciated & will go to all medical bills & prescriptions. I’ve reached out to 211 today & am applying for all the resources available for help like rent & utilities. 

THANK YOU SO MUCH!