Our 4-year-old daughter, Izzy, was diagnosed with NGLY1 shortly after birth. Our current goals are to have her sit on her own, walk with the help of equipment and find a wheelchair accessible van to enjoy more community and family events with her. 
 

We will do anything to help our daughter as we look to give her the best life possible through the medical services and therapies available. This makes it difficult to consistently work which is why we ask for financial help. Any and all donations of any size are appreciated more than you’ll ever know.