Cole Update

Hello!!
This is Amber, Cole's Mom. I just wanted to start off by saying THANK YOU to everyone that took the time to donate and pray for Cole. We are truly thankful for all of you. These past 5 months has started off rough, not know what is happening to seeing a full transition of Cole and of God's healing power and strength.
I wanted to provide an update to those that may not be aware of how he is doing.
On March 6th he received surgery and they removed 95% of the mass/tumor on his upper right lung area. The other 5% they were not safely able to remove. He has not needed any additional chemo at the time and was able to go home on April 4th. Since his surgery, they have been monitoring to ensure no new growth in that area or any other parts of his body. He has done MRI's and an MIBG scan. The MIBG scan looks at the body to see if the cancer has went anywhere else in his body which has not. Thank you Jesus!! The MRI just shows the remaining 5% but they are unable to confirm if it is alive or dead. He went home with a feeding tube which was able to be removed within 2 weeks and has been able to eat and drink a bottle all on his own. He is getting physical and speech therapy at home and has become so much stronger and has pretty much gained full strength. He is making really great progress in the almost 2 months he has been home. He still has his trach and will be going in for a airway evaluation on June 19th to ensure his airway his healthy and safe. If all is well, they are going to be capping his trach which will force him to fully breathe in and out of his mouth and nose. He will have an overnight stay to June 20th. If he does well and no issues breathing, they will be removing his trach.