Latest update as of Apr 02, 2026

  • Update 2

    Good morning everyone. Looks like this week of chemo is going to be way more challenging. I spent the last month for the most part keeping side effects at bay. Well, definitely got hit last night with side effects. Today is a stay very close to bathroom kind of day. Hopefully meds will kick in soon. I do get a scan next Friday April 10. Please pray 🙏 that tumors are stable or shrinking. We can't have any growth. If we do. Im off this chemo and no idea what's next.
    I did meet a lady online who has same cancer. Hitting same organs and bones as mine. She had a procedure called histotripsy done in February. (My cousin Nicole also sent me info on it) it uses sound waves to destroy the tumor in liver. Well this lady had round 1 of it, goes back today to see if it worked and scheduling her round 2. She only needs 2 rounds to kill it off cause the tumor is smaller. Hers is a size of plum. Mine is size of grapefruit. Her surgeon has performed over 100 of these procedure and all good results. Its new. It only works in liver. The liver tumor is my "queen bee" tumor. It started it all. It populated all the "honey bee" tumors. So the goal of this would be to anilate the queen bee then keep using chemo to knock out the honey bees.
    I brought this up to my dr. Who specializes in liver cancer. She has never heard of it and then told me immediately it wouldn't work cause I have all the other tumors. So instead of maybe doing research and talking to research team she automatically denied me the treatment. I think this would be a good thing for KU to know so they can start performing this on patients. Ill be the guinea pig. Just get it here. But it doesn't sound like that will happen. So I reached out to city of hope hospital to see if they do it and if they have any clinical trials as well just in case I'm taking off my chemo. Im waiting for them to message me back.
    If city of hope doesn't do it, then ill set up a consultation with Vanderbilt in TN. Use the same surgeon my online friend is using. The lucky thing, that is the hospital that my sister worked out before moving here and she is still active with them cause she goes and works 1 day a month with them. So for consultation I could just go with her there. Who knows 🤷‍♀️ im just really trying to find anything to help destroy this. I need Dr's behind me always looking for a what is next instead of that won't work, shutting me down immediately when you dont even know what it is.
    Water therapy is going great still. On chemo off week. Im up to 3 times a week. I dont know if I'll be able to go tomorrow with these side effects but we will see how I feel tomorrow. Thank you for all the continued support and prayers. It truly means so much to us. God Bless.


About this fundraiser

My long time friend since birth was diagnosed with Stage 4 Cholangiocarcinoma, bile duct cancer. It starts on the bile duct or liver. Hers started on her liver, went to her lungs, and spread to her bones. Less then 10k people get it a year. Its super rare. Super aggressive. And usually diagnosed at stage 4 due to not having any symptoms until it spreads. Velvet found out when doing an xray for arm pain. She found out initially with a tumor on her bone. Velvet has been through many different types of treatments with hope that it might be the one that saves her, to be told it's not working. Because this cancer is so rare doctors do not have many answers. She has traveled to different states trying to find a cure with no luck. She has had to quit her job, has had a terrible time fighting the system to get any help with the funds to save her life. She needs our help! 

I have read these requests before and although sad moved on and didn't think too much about it again. But this can be your story or someone else's story that you love. I promise you that you will never regret helping regardless of how much it is. Nothing is too small or too big to save someone's life. 

Listen to your heart ❤️ Thank you!

Organized by

Tabatha Infranca

Odessa, MO, USA

Organizer
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This fundraiser will directly support

Velvet Endecott

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Beneficiary